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Category Archives: Disabilities

After the Failed Bi-Pap Experiment

07 Tuesday Feb 2017

Posted by chaplines2014 in Disabilities, Health, Learning from mistakes, Uncategorized

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events, Serendipity, Synchronicity

 

psspectacledowl1

From their own positive experiences, several people were helpful and encouraging to me about the use of C-Pap or Bi-Pap machines, and I am grateful for that. We learn along the way much about ourselves, minds and bodies, and sometimes we learn that one size does not fit all.

Shortly after my last blog report, I learned more about my failure. I had “complied” in every respect with the advice to use my Bi-Pap machine, averaging seven hours of use per night at the end. The result was paradoxical. I was suffocating, and my blood oxygen level was declining, resulting in the 70% levels referenced in my last report, and increasing unstable angina during the night. I began with a moderate obstructive apnea, aggravated by chronic sinus problems. I ended with a serious central apnea, in which the connection between brain and breathing diminished. That is not desirable. I asked that question when the process began, “Does the use of a C-Pap machine sometimes replace the body’s own natural automatic impulses to breathe?” and I was told “No; that does not happen.” As it turns out, in special cases, it does. I am special.

Maybe it has something to do with the odd electrical wiring of my heart, which has two blocked fascicles, the electrophysiologist tells me. That has probably been the case almost all of my life, and it is not easy or safe to change. The nerve blockage at least complicates the issue of brain to heart and pulmonary system operation. I am all for easier solutions.

Finally, I was told to stop using the Bi-Pap device entirely. After a few nights I returned to the earlier pattern—no central apnea, and moderate obstructive apnea. Meanwhile I had gone to a dentist who was trained in fitting “oral appliances.”   (She was very kind and sympathetic.) The process is similar to fitting a set of dentures or braces—molds are taken of the existing teeth. A device is prepared that covers both upper and lower teeth, and the covers are connected so that the lower jaw can be gradually moved forward, using the upper and lower teeth as the anchors. Moving the lower jaw and tongue forward opens the airway in the throat. Combined with simple inserts for expanding the nostrils, this old “mouth breather” suddenly became a nose breather with expanded access to my windpipe. Adapting to the device was relatively simple, compared to the Bi-Pap machine. The oral appliance fits securely, so there is no problem with ever-shifting masks. The oral appliance is also very quiet. Gradually over the past four months the airway space has enlarged from my natural relaxed position to 7 mm larger in diameter. The resulting beneficial impact on apnea has been substantial.

I returned the BiPap machine. No hard feelings. Someone else will benefit from it—maybe even you. But if you feel like it is trying to suffocate you, even when the technicians increase the settings for the machine to work harder, it probably is.

Moving On from ‘A Fail’

28 Wednesday Sep 2016

Posted by chaplines2014 in Disabilities, Faith, Gullibility, Learning from mistakes, Words

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life experiences, Out of My Hands

3 Owls

Yesterday I got the news. I had failed. There was good news with the bad. I had averaged six and a half hours a night during the past six months with the blessed Bi-PAP machine. My number of apnea incidents per hour had reduced by… three. Whoopee! The resulting total made it three times the acceptable goal. My fifth mask had done pretty well. It usually let me sleep an hour before waking me. Unfortunately my face is evidently misshapen from what any of the existing masks fit. The neurologist’s verdict—a fail.

It is not easy to accept failure. I never failed a course. That ‘B’ in English the freshman year in high school, and in Biology in my sophomore year in college, were had to take, but in my defense I suffered with a kidney stone and infection during that college semester. I was never fired from a job, and when one job ended I always had another one to go to. I married one of the most helpful, loving, and gracious persons in the world, and we had two wonderful children who found terrific spouses, and we have three fantastic grandchildren who amaze us with their accomplishments, and they all still love me. At least they do everything to make me think they do. Somehow I have survived illnesses and close calls and the deaths of people close to me, and to faith goes the credit, but I made it through. I have made many mistakes and people have for the most part forgiven me and let me know that. I have enjoyed a long career that was, if not successful, at least fulfilling and rewarding in every way that I could expect. I consider myself to be one of the richest, most fortunate people who have ever lived, even without winning a lottery. Why buy a ticket? I can donate directly to the schools.

The money that my insurance companies have spent could have helped someone who really needed it. It could have bought a new car. (Not for me. I didn’t really need a new car.)

I am pretty tired of the Bi-Pap machine, but I will continue to use it until something else replaces it. I cannot remember sleeping so badly for months at a time, and feeling so exhausted because of it. I am cured of the sin of looking forward to bedtime. The initial hopes of reduced angina and arrhythmia have given way to just being glad I do not bother my wife with snoring as much as I did. That is probably enough, come to think of it.

One is supposed to learn from failure; it is respected as a great teacher. Next on the agenda is an “oral appliance.” I will make a call to the installer now. I have been delaying long enough.

Playing with Dynamite

13 Wednesday Apr 2016

Posted by chaplines2014 in Caring, Church, Death, Disabilities, Events, Growing up, Learning from mistakes, People, Small town life

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A License to Preach, events, Memories

Monkeys see, hear, speak no evil, Bangra.com

Marty (not-his-real name) was one of my parishioners many years ago—memorable nonetheless. His life would have been a case study in oppositional defiance if anyone had chosen to examine it. His parents and siblings were “good church members”—steady, reliable, active in volunteering and supporting as well as anyone else, but Marty was a no-show in the church and in the community as long as I was acquainted with him.

His father was a World War II veteran and his brother had served in the army, but Marty first showed up looking for me when he learned that I had been a draft counselor, and Marty wanted to avoid the draft at all costs, not on any principled grounds, as this was during the Vietnam war, but just because he didn’t want to serve his country under any circumstances. His timing was right and he managed to slip between the cracks when the draft lottery was instituted.

Next came his girlfriend, seeking help in dealing with his bad moods and abuse, which, predictably when co-dependence is strong, escalated steadily. He lived with his under-age girlfriend in her mother’s home, which I naively assumed should make it easy for her and her mother to kick him out. No child was involved. Neither she nor her mother could carry out a resolution to make Marty behave or leave. It appeared that her mother was as emotionally tied to Marty as his girlfriend was. We talked about all of their options, legally and behaviorally and in seeking help, but they did not change anything. Marty continued to abuse them within their own house.

Marty had trouble keeping a job, mostly because he could not take orders or follow directions. He always knew better than anyone else how any job should be done, or he simply did not want to do the job in anyone’s time other than his own. In his favor, Marty was intelligent and curious enough to figure out many things, and well-meaning employers saw his potential, especially when they knew the rest of his family and attempted with their enabling persuasion to give Marty another chance. Marty went from job to job at a time when many young adults were having trouble finding a first job.

Marty’s record included any misdemeanor you can name—tickets for speeding, parking, noise, shoplifting, drunkenness, disorderly conduct. Someone was always bailing him out in one way or another, although I could not persuade people that this was not helping Marty accept responsibility. I tried to find him, to talk with him about the direction of his life, but he was more adept at avoiding me than I was in catching him. For a while I lost track of him and the newspaper carried no more news of his infractions. I had hope that he might be growing up. He and his girlfriend had a son. She had stopped calling me to ask for advice. Things might be working out, I thought. Certainly I knew that there were many people praying that they would.

The end came in an unusual way. Marty had worked for a man who cleared trees and prepared land for development, and he knew where the dynamite was stored. Marty broke into the building and stole some dynamite and decided to have some fun with it, blowing things up. He was successful. One of the first things he blew up was himself.

I officiated at Marty’s funeral. I said in passing that there were many ways that Marty played with dynamite. My words were not appreciated.

“I never saw a cross-eyed preacher…but I’d rather see than be one.”

21 Wednesday Oct 2015

Posted by chaplines2014 in Disabilities, Growing up

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A License to Preach, Memories

Self-potrait 1988

I was seventeen when I had the opportunity for a surgery that would either correct or confirm a visible defect. By that time I had worked for years to overcome the “diploplia” that was gradually making my right eye, the near-sighted one, more and more dominant, and my left eye, the far-sighted one, less and less effective. I had worked on muscle control exercises, used more and more prisms in my eyeglasses, changed lenses every few months, and tried bifocals, but I was still losing ground steadily in the muscle control of my eyes. Surgery was the only option left, if I was to avoid being cross-eyed and losing the use of my left eye.

Many people have had to deal with that physical defect at a younger age than I did, and many have not had an opportunity to correct it, but, whatever age a person is, the social costs are present, and a teenager, hoping for a public career, finds those costs daunting. I was not looking forward to eye surgery, which came at the end of my senior year in high school, but I was dreading the loss of eyesight and visible attractiveness more.

Eye surgery to correct the muscle arrangements for both eyes involved a three hour procedure with my eyes removed from their sockets, the ophthalmology surgeon reported, a two-day stay in the hospital, and a three to four week recovery with my eyes bandaged.  It was my first surgery. I remember being nauseous afterward; my reaction to the sodium pentothal used for anesthesia was extreme. I don’t know what I said to the nurses, but I’m sure it was the truth. There was a general concern that the violence of my reaction was not helpful to my eyes, but I couldn’t do a thing about it. When I was returned to my room, I had a roommate, who happened to be a shooting victim in serious condition. I couldn’t see anything, of course, but his moaning and gasping did keep me awake throughout the night. It was a good time to pray, and his condition was clearly more critical than mine.

In the morning a tray was placed before me, and I felt my way through the various items on it. I poured the carton of milk mostly into a glass and proceeded to try to drink it, finding that it was actually cream provided for the sticky mass in the bowl, making my gag reflex return. My roommate was transferred to intensive care, I was told. All in all I was happy to go home the next day. I worried about the results of the operation for the next three weeks, until the bandages came off. The whites of my eyes were still red, but it was so much easier to focus and see without effort that I was greatly relieved.

The surgeon was pleased with the results, and, even though they weren’t perfect, they were so much improved that I no longer had to worry about loss of vision. In fact my eyesight steadily improved for many years.

I still wonder what my life and career would have been like without that surgery and its successful results. Like anyone with a visible disability, I suppose I would have adjusted and done my best to overcome the reactions of people around me and tried to compensate with other abilities. I am thankful that I didn’t have to.

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