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Category Archives: Health

The Luck of a Clown

20 Monday Nov 2017

Posted by chaplines2014 in Church, Faith, Growing up, Health, Prayer

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life experiences, Memories, Serendipity, Synchronicity

Self-potrait 1988  A six-year old boy put his name in the box for a drawing at the Grab-It-Here grocery store in Paxton. The prize he was hoping for was the shiny new Schwinn bicycle in the store window. Other prizes were on display, but the bike was the one that had his full attention. A couple of weeks later he learned that his name was drawn. He was a lucky winner, but not the winner of a bicycle. He won a stuffed clown, about half as big as he was. His mother brought it home, and he kept it for many years, since it was and remained the only thing he was lucky enough to win. Some luck, he thought.
Probably many objects attracted his attention and his hopes that he might be lucky enough to gain, but most were insubstantial, and their unimportance made them forgettable. The important things, he realized somewhere along the way, exceeded the realm of luck. To go to college and graduate school and get the scholarships, grants and fellowships to pay for them, to find a loving mate and to have her willing to marry him, even with the poverty and insecurity of the times in which they lived, to study for the ministry and find three churches that would accept him as their pastor, to have children and raise them to be responsible and successful adults—these were beyond the luck of the draw. In applying for a doctoral program, he was asked what he expected to be doing in ten, twenty, thirty years, and he answered that he expected to be a pastor doing his work well, and part of the time he wanted to teach philosophy, ethics, or bible, his academic interests, possibly at a community college, where a variety of ages and interests would be present. He was admitted to the doctoral program, and he completed it.
Ten years later he found himself in emergency rooms, successively on several occasions, until enough information accumulated to provide a diagnosis of the heart problems involved, stemming from childhood infections. The cardiologist told him that if he was lucky, without changing his lifestyle, he would probably live about seven years until he required at least an open-heart surgery. Not believing in luck, he chose to change his lifestyle—eating, drinking, exercising, and dealing with stress.
In all of these matters he was more than lucky, although not one of these was something that he could have completed by himself. If he had been confident enough to call this his life plan, then he also would have to be exceedingly happy to realize that the plan had been fulfilled even beyond his dreams. Now that boy is a seventy-one-year old man, still marveling that he has been, not so lucky, but so blessed to have had his dreams realized, and then some.
The future is still open and unknown, and his aims seem to be transforming the earlier goals into forms that are more limited and manageable in the years to come, according to the strength and breath that remain—still exercising, more slowly, and writing, teaching, finding ways to be helpful to family, friends, and the world beyond.

Finding Philip

10 Friday Nov 2017

Posted by chaplines2014 in Caring, Church, Faith, Growing up, Health, People, Suffering

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A License to Preach, life experiences, Memories, Serendipity

 

organ console   In 1985, while Jan and I were living at Minonk, Illinois, I read an article in the Bloomington Pantagraph about a skilled organist who drove himself in an adapted van back and forth thirty miles to Illinois Wesleyan University. There he played the organ and instructed students, which was remarkable because he was partially paralyzed due to ALS, and he had been dealing with this progressive disease for sixteen years after his diagnosis. To my surprise the subject was my friend Philip, whom I had not seen or talked to since 1968. I had no idea what had happened to him, but I had a clue to why he had seemed to disappear.

I called the only listed number bearing his last name and it belonged to his sister Mary, with whom he was living. She was cordial as I explained my connection to her brother from years ago. She said she would tell him I called, and I left my number. Soon Philip returned my call and enthusiastically invited me to come to their home.

Their home as well as his van was well-equipped to accommodate Philip and his wheel-chair. A ramp circled the back room entrance, which was centered around a large electronic organ console. After we spent an hour catching up on how we had both spent the last seventeen years, Philip demonstrated his project of recording music and adapting organ consoles for people who needed a manual pedal and recording arrangement like himself. He was in touch with several disabled organists, and he was convinced that instruments could be adapted so that their skills would not be lost. His ministry had been redirected, but he had not lost his desire to serve.

Over the three years that followed, we visited every two or three months. He continually tried to accept and adapt to the limits that his disease imposed. He had been able to slow the progress of the disease and work with the disabling effects, much like Stephen Hawking, and he was not quitting. He chafed at having his choices increasingly limited. He sought ways to have new choices, and in that search he proposed that he come to Minonk and investigate the possibility of living there independently.  I would have to drive his van, since he knew that the miles were more than he could drive, along with the regular daily tasks of self-care he had to manage. He had to return to his home with Mary by evening. He had already made arrangements to see an apartment in the local subsidized housing.

We made the trip, introduced Philip to my family and church, heard Philip play the church organ beautifully, visited the apartment, and got him safely home. He would think about what such a move would mean, although sister Mary was clearly not convinced that it would be wise. Nor was I, since no one I knew could provide the assistance that he would need in the future as well as his sister, but I was not ready to close that option if he chose it.  I was not able to persuade the congregation to share the duties of church organist, if Philip decided to come, although the faithful eighty-year-old organist, who had served the congregation for over forty years, was reaching the limits of his abilities as well.  At the end we all decided the move wasn’t a good choice, but I was glad that I had not simply rejected the option at the outset.  

Philip and Mary both expressed disappointment when I left Minonk for Burlington, Iowa, but I promised to keep them aware of our progress there. Our visits were fewer, but we stayed in contact. Philip suffered a heart attack and other disabilities as the years passed, and ALS paralysis took its toll. He died in 2002, after a few months in a nursing home. Mary, who had retired as a public school music educator in order to care for her brother, died in 2008. Few people have opened so many doors to understanding for me as these.

 

The Hidden Springs of Hidden Springs Trail

23 Thursday Feb 2017

Posted by chaplines2014 in Forest, Gullibility, Health, Hiking, Nature, Running, Seasons

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life experiences, Names and Titles, Serendipity

cropped-rock-creek-wilderness-oregon.jpg

With many record-setting warm days in a row, I’ve had an opportunity to try some of the many new trails in Northwest Arkansas. On cold days I hesitate to go where I might get lost or take a long time to return to where I can rejoin Jan. On warm days I can wander. There are more than forty miles of trails and 700 miles of roads in Bella Vista, not counting the golf course paths, and there are even more miles of trails in the contiguous cities to the south, so there are plenty of places to explore.

A new favorite is the Hidden Springs Trail that navigates a narrow steep-sided valley known as the Slaughter Pen, presumably because it was easy to drive herds of cattle from the broad plain at the top of the valley into an ever-narrowing channel until a herd would be compressed into a fenced neck before the valley broadened again. A fast, full current of water pours down the creek in the center of the valley, and the developed concrete and asphalt trail runs beside the stream for more than two miles. The stream looks and acts like one of the cold cave spring-fed streams along the Current River three hours east of here, where millions of gallons pour out of the ground every day, so it is an invitation to follow the stream until one comes to the “hidden springs” that give the trail its name.

The stream joins a couple of others below this valley where I have run for years, around Bella Vista Lake and along Little Sugar Creek. Amazingly in a couple of spots all of that water disappears below shelves of limestone, and then reappears a few hundred yards farther. Along the Hidden Springs Trail the water flows on the surface all the way and pours down some three and four feet tall falls in a few places, made even more lovely by the woods and shrubbery around them. Along the base of the rocky outcrops that line both sides of the valley, bare dirt bicycle paths run, and in several places the bicycle paths run half-way up the fifty to hundred foot cliffs or even along their top edges, providing a challenge to the experienced rider. It would be challenging enough for me to walk them, when I knew no bicycles were coming down those narrow paths, but I am content to keep walking the center until I find the source of all that water.

As I explored every day I ran a little farther up the developed trail, reaching the point where the busy stream was joined to a lazy, slower stream, and following the active one in my search for the hidden springs. Since the entry to the trail lies a half-mile beyond the parking lot, and the point where the streams converge is already a mile and a half upstream from that trail entrance, my three mile daily goal was easily surpassed in the quest. The early spring flowers, birds, and critters made it interesting, so I kept going. After two more days I could see that I was finally nearing the goal, three miles from where I started, where water poured into the creek bed.

A great blue heron stalked the small turbulent pool that fed the stream, and there was little bubbling or frothing of the water, so it must have been clear of most of the chemicals that saturate the groundwater these days, which was surprising. The source of the stream, instead of being the hidden springs I sought, was a series of large concrete vessels that served the Bentonville Sewage Treatment Plant.

A Church Embraces People with AIDS

23 Thursday Feb 2017

Posted by chaplines2014 in Caring, Church, Citizenship, Death, Faith, Health, People, Suffering

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life experiences, Memories, Serendipity

 

spiral aurura

In the 1980’s and early 90’s, when AIDS was still a scandal to many people, a modern leprosy, popularly associated with promiscuous homosexual activity, although we knew it was acquired by other means as well, a church invited AIDS Burlington to use their facilities without charge for their regular and special meetings. AIDS Burlington consisted of people with AIDS, their friends, partners, and families, public health workers, and other interested and compassionate people who wanted to work together to learn how to respond personally, medically, educationally, and politically. They needed to meet regularly and have safe space to talk confidentially as well as space to present information to the public as it became available. They had no funds for these purposes, especially when medical bills were already overwhelming.

 

The church consistory discussed the possibilities. Outsiders might consider this church a sponsor of the activities associated with AIDS, instead of a giver of hospitality to people in need. We might receive threats from extremists. People might avoid our building, thinking it was contaminated. AIDS sufferers and their families might want to come to worship or take part in other activities, which could be a benefit to them, or it could drive other people away, who were afraid of contact with them. Not much helpful information was available for the first few years and misinformation was rampant. It was such a small thing to give space and to be present with the people who were trying to confront the medical and social problems that came with AIDS. Should we hide from those who needed our help?

 

The church offered space and the offer was accepted. For a few years, when several members of the community and their families were dealing with the AIDS crisis, before there was any systematic treatment or undisputed public information, AIDS Burlington were our guests, and they were both appreciative and respectful guests, who, as usual, gave at least as much to us as we gave to them. Some of those who able to survive and those who had to say farewell to their loved ones became a part of ‘us.’

We faced some of the unwelcome responses we feared, but never enough to make us regret the decision that we had made.

 

In and Out of the Delivery Room

13 Monday Feb 2017

Posted by chaplines2014 in Caring, Events, Faith, Health, Learning from mistakes

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events, life experiences, Memories, Synchronicity

Chicago skyline 1970

We were anticipating the birth of our first child and preparing for it by taking classes in the Lamaze method of natural childbirth, as were other families in the Chicago Theological Seminary student community. Our obstetrician, Dr. James Jones, was popular in our Chicago Southside neighborhood. His office was always packed, yet he had time for each of his patients. He was a tall, handsome, personable African-American gentleman. No wonder his patients adored him. He also made time to fly to Haiti regularly to donate his services to expectant mothers there.

With Lamaze comes the expectation that husbands will be assisting their wives throughout labor and delivery, and Chicago had a law on the books banning husbands from the delivery room. We made a loud protest to the City Council, and the law was suspended. Having assisted in large animal births and trained in emergency human delivery practices, I had a vivid sense of what I could expect in the delivery room, and the Lamaze classes refreshed my previous experience with movies of deliveries with the aid of the Lamaze method. Jan and I had agreed that we would use Lamaze as much as we could, but we would not be afraid of using anesthesia if that proved necessary. Dr. Jones was on board with those ideas.

The due date was April 20, or so. Early in the week the city reversed its position and again banned men from the delivery room. The case went to court.

During the week of April 30th, the sleeplessness of end-of-term pregnancy was accompanied by the University of Chicago campus demonstrations following the killing of students at Kent State. An all-day and all-night vigil continued for the next week in the open lawns just half a block away from us.

Our first baby was typically late in coming, so we still had hope that a ruling in our favor would come out in time. One week overdue and Dr. Jones was gone to Haiti for a week. Two weeks overdue, with Dr. Jones due back the next day, we were just hoping that the baby would come out, sooner rather than later.

It was Mother’s Day, May 10, 1970, a beautiful sunny day. Our next-door neighbors in the apartment house, Sid and Arnie, were planning to make dandelion wine. We decided to help by picking blossoms on the Midway Plaisance lawns where the dandelions flourished. One way or another we were going to induce the coming of this baby.  Sid was a nurse at Chicago Lying-In Hospital nearby where we were planning to go. Sure enough, while we were picking dandelions, Jan experienced her first labor pains. Dr. Jones was due t in the next few hours, and the court was due to make its ruling.

Jan’s labor turned into a twenty-four hour ordeal. We went through all the breathing patterns. Jan was spent; so was I for that matter, with less justification of course. Dr. Jones was in the hospital, delivering a baby for Mrs. And Mr. Dick Gregory (the comedian), whose room was across the hall from ours, and filled with baskets of flowers. No court ruling came until a few days later, after Alicia was finally delivered, when the court ruled in favor of husbands in the delivery room. Too late for me. I was too tired to care anyway.  Jan had been whisked away. There was nothing for me to do except worry and pray about for my overly tired wife.

Jan remembers seeing Dr. Jones enter the room wearing a neck brace. (It was heavy duty bringing all of those babies into the world.) A few minutes later out came our baby. Later they all emerged from the delivery room, with my exhausted Jan holding a red-faced bald-headed, one-eyebrowed baby, who was not yet, but soon would be, the most beautiful little girl in the world.

I still wonder why the men of the city council thought it was their duty to keep other men out of the delivery room, but for us more important matters needed to be addressed—diapers, feedings, schedules, and finding our way as new parents.

After the Failed Bi-Pap Experiment

07 Tuesday Feb 2017

Posted by chaplines2014 in Disabilities, Health, Learning from mistakes, Uncategorized

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events, Serendipity, Synchronicity

 

psspectacledowl1

From their own positive experiences, several people were helpful and encouraging to me about the use of C-Pap or Bi-Pap machines, and I am grateful for that. We learn along the way much about ourselves, minds and bodies, and sometimes we learn that one size does not fit all.

Shortly after my last blog report, I learned more about my failure. I had “complied” in every respect with the advice to use my Bi-Pap machine, averaging seven hours of use per night at the end. The result was paradoxical. I was suffocating, and my blood oxygen level was declining, resulting in the 70% levels referenced in my last report, and increasing unstable angina during the night. I began with a moderate obstructive apnea, aggravated by chronic sinus problems. I ended with a serious central apnea, in which the connection between brain and breathing diminished. That is not desirable. I asked that question when the process began, “Does the use of a C-Pap machine sometimes replace the body’s own natural automatic impulses to breathe?” and I was told “No; that does not happen.” As it turns out, in special cases, it does. I am special.

Maybe it has something to do with the odd electrical wiring of my heart, which has two blocked fascicles, the electrophysiologist tells me. That has probably been the case almost all of my life, and it is not easy or safe to change. The nerve blockage at least complicates the issue of brain to heart and pulmonary system operation. I am all for easier solutions.

Finally, I was told to stop using the Bi-Pap device entirely. After a few nights I returned to the earlier pattern—no central apnea, and moderate obstructive apnea. Meanwhile I had gone to a dentist who was trained in fitting “oral appliances.”   (She was very kind and sympathetic.) The process is similar to fitting a set of dentures or braces—molds are taken of the existing teeth. A device is prepared that covers both upper and lower teeth, and the covers are connected so that the lower jaw can be gradually moved forward, using the upper and lower teeth as the anchors. Moving the lower jaw and tongue forward opens the airway in the throat. Combined with simple inserts for expanding the nostrils, this old “mouth breather” suddenly became a nose breather with expanded access to my windpipe. Adapting to the device was relatively simple, compared to the Bi-Pap machine. The oral appliance fits securely, so there is no problem with ever-shifting masks. The oral appliance is also very quiet. Gradually over the past four months the airway space has enlarged from my natural relaxed position to 7 mm larger in diameter. The resulting beneficial impact on apnea has been substantial.

I returned the BiPap machine. No hard feelings. Someone else will benefit from it—maybe even you. But if you feel like it is trying to suffocate you, even when the technicians increase the settings for the machine to work harder, it probably is.

Getting the Lead Out

04 Saturday Feb 2017

Posted by chaplines2014 in Caring, Events, Farm, Gullibility, Health, House, Learning from mistakes, People

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events, life experiences, Memories, Serendipity

paxton-chapman-farmhouse

My father was inhabiting his house by himself, after Mother’s death, and it was time to simplify things, like fancy window dressings and shelves of collectibles gathering dust. A few years passed before we arrived at a stage when my one visit a month could provide just enough time to sweep and dust and finish laundry, so that he would have an easier time doing what he needed to do by himself. Part of that process was replacing the sheer curtains and drapes with mini-blinds. My brother generously supplied the mini-blinds for sixteen large double-hung windows. They looked neat and they were versatile for providing light when needed and privacy when it was needed.

After ten years there by himself, and the loss of his driver’s license, the day finally came when he could no longer live there. It was a sad day, and we had to stop at the end of the lane for him to take a long last look, before we moved on to Burlington, where he would live at my house.

The question remained—what would we do with the property? Larry Schwing had worked with my father for years, and he had gradually assumed more of the responsibility for the farm until he was the full-time tenant farmer. The income from the farm would accumulate and provide what was needed for my father’s eventual move to assisted living and then nursing care. The house could contribute in the same way. We cleared the house of furnishings, held a sale of the items that would no longer be needed, and prepared for renters. The Larry Magelitz family arrived just when the house was ready. It would provide a comfortable home for the couple and their two little boys. Their life there went well for their first several months, until routine blood tests showed warning levels for lead in the little boys. It was a small indication, but there is no safe level for lead in children, and we were all upset that we had exposed them to danger in the old house.

We arranged for lead testing throughout the house. There were many painted surfaces, plenty of places where peeling paint and other materials could have been the source, but none of them showed a positive test for lead. Finally, the relatively new mini-blinds were tested, and the surprise came. They were saturated with lead, and the dust from their painted surfaces showed the positive results we had been searching for. The new mini-blinds from China were the source. There was no inspection or restriction of lead on anything that was being imported in the country. We quickly stripped the house of every set of blinds and sent them to the landfill. After a thorough cleaning, the Magelitz family was able to live there until a new job took them away. Another young family soon took their place, and, happily, they could enjoy the house for eleven years without fear of lead contamination. My parents always enjoyed the young families that lived nearby as their neighbors. We knew that they blessed the use of their home for these families and would want them to live there in safety.

The Surprising Loss of My Virginity

30 Monday Jan 2017

Posted by chaplines2014 in Death, Events, Faith, Growing up, Gullibility, Health, Innocence, Learning from mistakes, Suffering

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3 Owls

The fall of my sophomore year at Illinois Wesleyan began with high expectations. I had finished my freshman year with straight A’s. I had a steady girlfriend.  I was newly elected president of the Methodist Student Movement. I was enjoying my classes including “Greek II,” “Creative Writing,” and “Biology,” which I hadn’t gotten to take in high school. And I was preparing for the next summer to be spent in Mexico with a Catholic student work project. But after the first few weeks I began to suffer sharp pains in my back, which only grew worse as I grew weaker every day. Finally, early on one weekday morning in October, I made it into the dormitory bathroom with severe pain in my bladder and penis, pouring bloody urine into the toilet until I passed out. When I awoke and the blood was just oozing, I dressed and headed for the campus health service. I thought I was dying.

Nurse Velma Arnold looked at me knowingly as I explained what had happened. “You have VD,” she said. It took a minute for that to soak in, before I said, “But that is impossible.” And she said, “That’s what they all say. Obviously I can’t help you. You will have to see Dr. Cunningham. I will need to know who your sexual partners have been.” It was hard to make her believe that I couldn’t answer the last question, since I hadn’t had any. She finally let me go anyway.

Later that day, still in misery, I saw Dr. Cunningham, who seemed to take a broader view of the matter. He recommended that I drink as much beer as I could while I was waiting to see Dr. Killough, the urologist. He suspected that I was experiencing kidney stones or a urinary tract infection or both, which is what it turned out to be. Having never drunk an alcoholic beverage, and being 19, under the legal drinking age, on a campus where possession of alcohol was considered cause for expulsion, I was not inclined to take his advice about the beer. He didn’t give me a prescription for beer, but he did give me an antibiotic sulfa drug. By the time I saw Dr. Killough, a day or two later, and he confirmed the double diagnosis with a cystoscope, I was also beginning to show the hives of an allergic reaction to the sulfa drug. The cystoscope, experienced regularly during the next several months, along with a few days in the hospital over Christmas break, removed every ounce of false modesty that I had developed in my 19 years. I had discovered more about my own genitalia than I ever wanted to know.

 

 

I was not completely clear of infection or signs of kidney stones until the next summer. The plans for a Mexican work trip cancelled, I wished my Catholic friends and girlfriend farewell, took a summer course in the history of Christianity, and looked for something else to do.

The Problem Pregnancy Counseling Service

04 Wednesday Jan 2017

Posted by chaplines2014 in Caring, Church, Citizenship, Faith, Health, People, Suffering, Volunteering

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dock at sunset

My move to my first full-time parish at Tilton coincided with an important national decision—the Supreme Court ruling in Roe vs. Wade. Legal abortion, formerly restricted to a few states and people of wealth, was then available through qualified medical facilities to every first and second trimester pregnant woman at relatively low cost. Two local obstetrician-gynecologists and workers in the county health department realized that they had a challenge on their hands. Who would provide counseling to the many women who now had a choice that they did not have previously?

The doctors and health workers did not feel ready or able to counsel at length with women who were facing new and legal options for which they had not prepared. The two OB-GYNE doctors disagreed between themselves about the morality of the new option. The health workers had mixed feelings. They turned to local ministers, asking for ministers and other counselors who were concerned to join in providing free, confidential, and non-directive counseling to women who desired it. Eight ministers and counselors responded.

The sticking point was the need to be non-directive, not to tell women what to do, not to impose a religious position, but to be willing to listen to different circumstances and needs and religious positions, explore feelings, provide information that was as objective as possible, and let women make their own final decisions. We all faced a steep learning curve, gathering information on all options that were available, including the medical facilities that provided abortions, procedures used, and costs involved, as well as the ethical and psychological considerations that women and their partners and families might face, whichever decision they made. Available resources for supporting a new child or adoption were necessary as well. Before we began, we developed a standard list of themes that would be a part of each session, and we revised it regularly.

The Problem Pregnancy Counseling Service continued for the next seven years. The counselors met together regularly to compare and enhance what we were learning, to recruit and replace counselors, and to support one another in emotional struggles. Not everyone of the original group could maintain the standards that we had imposed on ourselves, nor did new volunteers find them easy. At the end of that time, the polarization of abortion as an issue had grown to make non-directive counseling sound like ‘permissive’ or ‘encouraging’ to outsiders, so the counseling pool had shrunk and recruitment of new counselors became politicized. Women and doctors were more familiar with their own options as people had made their separate decisions and shared them with others. Fewer women were asking for counseling. We disbanded.

What had we learned as counselors? There was no standard case of a woman coming for counseling. Women’s motivations and circumstances varied enormously, and our awareness of heart-wrenching circumstances and difficult decisions expanded. Male partners were seldom available for support. We varied among ourselves in our ability to empathize or offer emotional support to those who came to us. We also had to deal with our own grief and depend on others for support. The politics of the issue made abortion more accessible to some and more difficult for many. What had long been an illegal underground activity remained part of an emotionally charged secret, as ‘underground’ as ever, although usually without the dire medical consequences of local illegal abortions.

None of us were immune to the personal threats that were directed at us from abortion absolutists. Yet all of us had people come to us later thanking us for help in their difficult times.  We would face the same issues again wherever we were, but not with the frequency or intensity of those seven years.

Titration and Me

14 Thursday Jul 2016

Posted by chaplines2014 in Events, Health, Learning from mistakes, Words

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3 Owls

Six months ago I entered a sleep study. I thought I was sleeping well, getting my eight or nine hours a night of solid sleep, usually interrupted by a brief trip down the hall once a night. Jan encouraged the decision, asserting that she was tired of finding me taking time-outs from breathing. There was also the occasional early morning when I would awaken with severe chest pain and a pulse sub-30 bpm. The first night of the study was miserable—noisy, hard mattress, wires attached to nearly every part of my body, but the technician was glad to let me know that I had slept the required three hours, I did indeed have sleep apnea (which I have known for years), and I would need to return someday to have a titration study.

Titration is a laboratory method of quantitative chemical analysis that is used to determine the unknown concentration of an identified analyte. I expected that the only time this would become important in my life would be the study of concentrations of greenhouse gasses in the atmosphere. It turned out that the study of oxygen saturation in my blood had become the issue, since 70% was probably not enough.

I didn’t hear anything back from anyone for two months, so I judged that I was in the clear, but Jan thought I should check with someone about the titration study schedule. Unfortunately I had just been overlooked, and they wanted me to have the study after all, so it was scheduled for two months later. Then a cancellation occurred, and they wanted me to come in and fill it six weeks early. When I reported for the study, the cancellation had been a mistake, the other person had shown up, and I was sent home again, but not for long. A few nights later they were ready for me again.

On the night of the titration study, in the same hard bed and with the same wiring attached, I tried out three different facial devices, attached to a “Continuous Positive Airway Pressure” pump to provide breathing assistance during sleep. If the hospital space was noisy or not, it did not matter, because the facial devices, from the “nose pillows” to the “nasal mask” to the “nose and mouth mask” made enough noise and leaked enough to keep me from sleeping and make the results ambiguous. Nonetheless, the physician in charge wrote a prescription for a Bi-PAP machine (with a two stage pressure setting) and the last mask that I tried, and soon I had one to use for a three month trial. The mask did not fit well, so after three weeks, I exchanged it for another. Although it fit better, the machine and mask still made getting to sleep difficult, and they still woke me a dozen or more times every night for the next three weeks.

At that point, only my wife’s faith and the encouragement of three people who had successfully adapted to the use of the devices kept me from dropping the whole project. I had to admit there were already two benefits—Jan was sleeping better, and I had not experienced chest pain or extra-slow heart rate for the last three weeks.

Three months after the original titration study, I am doing better. The supervising physician is happy that I have met the required “four plus” hours of BiPap use every night. At the time of my appointment, they had not seen the results of the continuous wi-fi monitoring system, because the medical equipment people had not bothered to connect me to my physician’s office (and the office had not requested it). A few hours later they adjusted the pressure on my machine upwards, so, presumably, my “titration” has finally occurred. At least the rough indicators of better oxygen saturation –fewer episodes of breathing interruptions—were not yet where they wanted them to be, at twenty per hour instead of five, so they have increased the pressure setting. There is yet hope. Having “qualified” for further attention, since I am “compliant,” I have another chance to get a better-fitting mask and possibly even more adjustments that increase the oxygen saturation in my blood. I am sleeping better, almost as well as when I started. Thank you to my medical insurers for their investment of fourteen thousand dollars, and counting.

This is not a problem. It is a learning experience. I am smiling. Maybe you will, too, if you ever have a sleep study.

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